Kier Kares Programs
The Kier Kares Programs and services are
structured to give immediate and direct relief to sickle cell families
in various forms. These programs will be monitored by the KHF Board of
Directors and evaluated to ensure there providing the necessary needs of
the sickle cell community.
• A holiday outreach program to provide meals for families and toy
program to provide toys for sickle cell affected children. Sickle Cell
Disease puts an increasing financial and emotional strain on families
during the holidays. Kier’s Hope wants to help manage the holiday stress
with its assistance programs.
Counseling Resource for Family and
• Sickle Cell disease affects the entire family. It is imperative
that the family has some type of counseling to manage all the stressors
related to sickle cell disease. We want to ensure that persons living
with sickle cell disease have a healthy and well structured support
system. We will research and help find resources federal and local to
ensure the families have the assistance they need. KHF does not directly
provide counseling services.
Sickle Cell Health Fairs and Informational Seminars
• Know your Sickle Cell Disease Status – There was a National
recommendation to screen all infants for Sickle Cell Disease since 1987.
However, it wasn’t until about 1980 when all states tested infants for
SCD. Those born prior to the mandatory testing may not know if they
carry the Sickle Cell gene. Immigrants from the Caribbean, Mexico, and
other countries where testing of infants is not mandatory at birth are
now here in the US and unaware if they carry and will pass the sickle
cell gene to their child.
• Sickle Cell Families have a lot of social and financial burdens and
the Kiers Kares Programs can help navigate and ensure they are receiving
the federal and local social services they need to manage their lives.
Emergency Assistance Programs
• This program helps provide emergency funding for basic living
needs, medical equipment, and transportation for the person affected
with Sickle Cell. The families must meet the foundation income
requirements for assistance.
Alicia Sickle Cell Sitters
• This program is established to assist working families who have no
one to care for their other children while they have to remain in the
hospital with their SCD affected child. This program is a network of
family members approved to assisting childcare so that parents can
continue to work and not have to worry about child care. This program
requires registration and approval based on criteria established by the
KHF Board of Directors and all participants must go through a background
Kier Spates Scholarship Fund
• The Scholarship program will be designed to provide some financial
relief for Sickle Cell affected families who have a student(s) enrolled
in a College or University. The primary goal of this college scholarship
is to reward academic achievement that was accomplished in spite of the
obstacles provided by sickle cell disease.